News Â鶹´«Ã½ from International League Against Epilepsy display Latest news from International League Against Epilepsy on News en-us Copyright 2025 News News Â鶹´«Ã½ from International League Against Epilepsy 115 31 / /images/newswise-logo-rss.gif Genetic Testing for Epilepsy Surgery: Dr. Pat Moloney /articles/genetic-testing-for-epilepsy-surgery-dr-pat-moloney/?sc=rsin /articles/genetic-testing-for-epilepsy-surgery-dr-pat-moloney/?sc=rsin Mon, 24 Mar 2025 20:05:56 EST In the second episode of our genetics and epilepsy series, Sharp Waves explores how genetic insights can inform considerations and outcomes of epilepsy surgery. Dr. Alina Ivaniuk interviews Dr. Patrick Moloney, currently an epilepsy genomics fellow at the Chalfont Center for Epilepsy at University College London. International League Against Epilepsy Recommandations consensuelles sur la facon de gerer l'epilepsie avec myoclonie des paupieres (syndrome de Jeavons) /articles/recommandations-consensuelles-sur-la-fa-on-de-g-rer-l-pilepsie-avec-myoclonie-des-paupi-res-syndrome-de-jeavons/?sc=rsin /articles/recommandations-consensuelles-sur-la-fa-on-de-g-rer-l-pilepsie-avec-myoclonie-des-paupi-res-syndrome-de-jeavons/?sc=rsin Mon, 24 Mar 2025 19:55:32 EST L'EEM est un syndrome d'epilepsie generalisee caracterise par une triade de caracteristiques cliniques : crises induites par la fermeture de l'oeil ou modifications de l'EEG, myoclonie des paupieres avec ou sans crises d'absence et photosensibilite. Il apparait principalement chez les femmes. Des lignes directrices consensuelles sur la presentation clinique, l'evaluation et la prise en charge des ESEE ont recemment ete publiees dans Epilepsia. International League Against Epilepsy Hola, mi nombre es epilepsia: Como la terminologia influye en el estigma y la comprension de la epilepsia en todo el mundo /articles/hola-mi-nombre-es-epilepsia-c-mo-la-terminolog-a-influye-en-el-estigma-y-la-comprensi-n-de-la-epilepsia-en-todo-el-mundo/?sc=rsin /articles/hola-mi-nombre-es-epilepsia-c-mo-la-terminolog-a-influye-en-el-estigma-y-la-comprensi-n-de-la-epilepsia-en-todo-el-mundo/?sc=rsin Tue, 18 Mar 2025 10:15:08 EST La terminologia asociada con la epilepsia se deriva de la informacion erronea que rodea a la afeccion y se alimenta de ella. Aunque la comprension de la epilepsia como una afeccion neurologica ha avanzado drasticamente en los ultimos 150 anos, las palabras utilizadas para describir la afeccion reflejan percepciones historicas que ya no son precisas. International League Against Epilepsy Genetic Testing in Epilepsy: Who, How, and Why? /articles/genetic-testing-in-epilepsy-who-how-and-why/?sc=rsin /articles/genetic-testing-in-epilepsy-who-how-and-why/?sc=rsin Mon, 17 Mar 2025 19:35:49 EST This first episode in a multipart series covers the basics of genetic testing in epilepsy. Dr. Alina Ivaniuk interviews Dr. Ilona Krey, a physician and researcher at the Institute of Human Genetics at Leipzig University Medical Center. International League Against Epilepsy Epilepsy Surgery Outcomes: Two Experiences, Life-Changing Consequences /articles/epilepsy-surgery-outcomes-two-experiences-life-changing-consequences/?sc=rsin /articles/epilepsy-surgery-outcomes-two-experiences-life-changing-consequences/?sc=rsin Fri, 14 Mar 2025 10:40:03 EST Two families. Two daughters with epilepsy. Both have epilepsy surgery--with dramatically different outcomes. International League Against Epilepsy Reduccion de la fuga de cerebros en neurologia y epileptologia /articles/reducci-n-de-la-fuga-de-cerebros-en-neurolog-a-y-epileptolog-a/?sc=rsin /articles/reducci-n-de-la-fuga-de-cerebros-en-neurolog-a-y-epileptolog-a/?sc=rsin Tue, 11 Mar 2025 20:30:24 EST La emigracion de profesionales calificados de paises con menos recursos a paises con mayores recursos se conoce comunmente como fuga de cerebros. El fenomeno afecta a muchos sectores, entre ellos la neurologia y la epileptologia.vLas razones para emigrar generalmente se dividen en factores de "empuje" (cualquier influencia que pueda expulsar a alguien de un pais) y factores de "atraccion" (una influencia que atrae a alguien hacia un pais). International League Against Epilepsy Heart Health, Epilepsy, and SUDEP /articles/heart-health-epilepsy-and-sudep2/?sc=rsin /articles/heart-health-epilepsy-and-sudep2/?sc=rsin Fri, 21 Feb 2025 11:10:37 EST Sharp Waves spoke with a neurologist and a cardiologist who are part of a team researching the interactions among epilepsy, seizures, heart function, and SUDEP. Learn more about their research. International League Against Epilepsy Slowing Brain Drain in Neurology and Epileptology /articles/slowing-brain-drain-in-neurology-and-epileptology/?sc=rsin /articles/slowing-brain-drain-in-neurology-and-epileptology/?sc=rsin Thu, 13 Feb 2025 21:30:42 EST Brain drain in neurology can hinder the establishment of clinical, research, and training programs and negatively affect medical care. International League Against Epilepsy Exercise and epilepsy: Research and myths /articles/exercise-and-epilepsy-research-and-myths/?sc=rsin /articles/exercise-and-epilepsy-research-and-myths/?sc=rsin Thu, 13 Feb 2025 20:10:59 EST In this episode, we explore the science behind exercise as an adjunct treatment for epilepsy and debunk some common myths. Spoiler alert: With very rare exceptions, exercise does not increase seizure risk. And as with the general population, exercise can have beneficial effects. International League Against Epilepsy Recomendaciones de consenso sobre como afrontar la epilepsia con mioclonias palpebrales (sindrome de Jeavons) /articles/recomendaciones-de-consenso-sobre-c-mo-afrontar-la-epilepsia-con-mioclon-as-palpebrales-s-ndrome-de-jeavons/?sc=rsin /articles/recomendaciones-de-consenso-sobre-c-mo-afrontar-la-epilepsia-con-mioclon-as-palpebrales-s-ndrome-de-jeavons/?sc=rsin Fri, 07 Feb 2025 19:50:23 EST La EEM es un sindrome epileptico generalizado caracterizado por una triada de caracteristicas clinicas: crisis provocadas por el cierre de los ojos o cambios en el EEG, mioclonias en los parpados con o sin crisis de ausencia, y fotosensibilidad. Se presenta predominantemente en mujeres y suele ser una condicion de por vida que aparece entre los 3 y los 12 anos. International League Against Epilepsy It's All Connected: How Does Epilepsy Affect Heart Health? /articles/it-s-all-connected-how-does-epilepsy-affect-heart-health/?sc=rsin /articles/it-s-all-connected-how-does-epilepsy-affect-heart-health/?sc=rsin Thu, 06 Feb 2025 09:40:18 EST People with epilepsy have an increased risk of sudden cardiac death, compared with the general population. Harvard researchers discuss the latest study results and their implications. International League Against Epilepsy Practice Guideline on Outcomes After in Utero Exposure to Anti-Seizure Medications: Dr. Alison Pack /articles/practice-guideline-on-outcomes-after-in-utero-exposure-to-anti-seizure-medications-dr-alison-pack/?sc=rsin /articles/practice-guideline-on-outcomes-after-in-utero-exposure-to-anti-seizure-medications-dr-alison-pack/?sc=rsin Wed, 05 Feb 2025 09:40:14 EST Today's topic is recent guidelines about treatment for people with epilepsy of childbearing potential. The guidelines cover teratogenesis as well as perinatal and neurodevelopmental outcomes after in utero exposure to anti-seizure medications. Sharp Waves spoke with first author Dr. Alison Pack. International League Against Epilepsy Changing the term for "epilepsy" in Malaysia: Why and how? Dr. Chong Tin Tan /articles/changing-the-term-for-epilepsy-in-malaysia-why-and-how-dr-chong-tin-tan/?sc=rsin /articles/changing-the-term-for-epilepsy-in-malaysia-why-and-how-dr-chong-tin-tan/?sc=rsin Wed, 05 Feb 2025 09:40:03 EST In the medical world, diseases and conditions have sometimes been given inappropriate or even offensive names. The word for epilepsy in many Asian languages translates to stigmatizing terms that neurologists across the region are trying to correct. Sharp Waves interviews Dr. Chong Tin Tan. International League Against Epilepsy Global neurology: Pitfalls and purpose - Dr. Melody Asukile and Dr. Deanna Saylor /articles/global-neurology-pitfalls-and-purpose-dr-melody-asukile-and-dr-deanna-saylor/?sc=rsin /articles/global-neurology-pitfalls-and-purpose-dr-melody-asukile-and-dr-deanna-saylor/?sc=rsin Wed, 29 Jan 2025 18:40:02 EST With all the best intentions, undertakings in global neurology can include assumptions and biases that lead to unforeseen negative consequences. Sharp Waves spoke with Dr. Melody Asukile and Dr. Deanna Saylor, who discuss some of these unforeseen consequences and talk about what makes for productive, ethical, and sustainable global neurology initiatives. International League Against Epilepsy Los cursos de formacion en epilepsia mejoran la atencion no especializada. Tambien pueden impulsar un cambio nacional /articles/los-cursos-de-formaci-n-en-epilepsia-mejoran-la-atenci-n-no-especializada-tambi-n-pueden-impulsar-un-cambio-nacional2/?sc=rsin /articles/los-cursos-de-formaci-n-en-epilepsia-mejoran-la-atenci-n-no-especializada-tambi-n-pueden-impulsar-un-cambio-nacional2/?sc=rsin Tue, 21 Jan 2025 17:05:28 EST Muchos paises carecen de suficientes especialistas para atender a las personas con epilepsia. Incluso en los paises de ingresos altos, un porcentaje significativo de personas con epilepsia reciben la atencion medica de un no especialista. International League Against Epilepsy Hello, My Name Is Epilepsy: How Terminology Influences Stigma and Understanding of Epilepsy Around the World /articles/hello-my-name-is-epilepsy-how-terminology-influences-stigma-and-understanding-of-epilepsy-around-the-world/?sc=rsin /articles/hello-my-name-is-epilepsy-how-terminology-influences-stigma-and-understanding-of-epilepsy-around-the-world/?sc=rsin Tue, 21 Jan 2025 09:40:08 EST In many languages, terms for epilepsy have derogatory or stigmatizing meanings. In some countries, neurologists are trying to change these terms to reflect our understanding of epilepsy as a brain disease. Can the stigma surrounding epilepsy be lessened by changing the words we use to describe it? International League Against Epilepsy Epilepsy Comorbidities Are Present Before Diagnosis: Research Recap with Remy Pugh and Dr. Chris Tailby /articles/epilepsy-comorbidities-are-present-before-diagnosis-research-recap-with-remy-pugh-and-dr-chris-tailby/?sc=rsin /articles/epilepsy-comorbidities-are-present-before-diagnosis-research-recap-with-remy-pugh-and-dr-chris-tailby/?sc=rsin Fri, 22 Nov 2024 11:55:09 EST Some people with epilepsy also experience memory and learning issues, as well as depression or anxiety. A study in Australia screened people for these conditions at a seizure clinic, before anti-seizure medications had been prescribed. Compared with the control group, the people at the first seizure clinic had higher rates of cognitive and neuropsychological issues. International League Against Epilepsy Consensus Recommendations on Navigating Epilepsy with Eyelid Myoclonia (Jeavons Syndrome) /articles/consensus-recommendations-on-navigating-epilepsy-with-eyelid-myoclonia-jeavons-syndrome/?sc=rsin /articles/consensus-recommendations-on-navigating-epilepsy-with-eyelid-myoclonia-jeavons-syndrome/?sc=rsin Fri, 22 Nov 2024 11:45:48 EST Epilepsy with eyelid myoclonia is a generalized epilepsy syndrome characterized by eye-closure-induced seizures or changes on the EEG, eyelid myoclonia--jerks of the eyelids and eye-rolling--with or without absence seizures, and photosensitivity. It appears predominantly in females and usually starts between the ages of 3 and 12. International League Against Epilepsy Epilepsy Training Courses Improve Non-Specialist Care. They Also Can Spur National Change /articles/epilepsy-training-courses-improve-non-specialist-care-they-also-can-spur-national-change/?sc=rsin /articles/epilepsy-training-courses-improve-non-specialist-care-they-also-can-spur-national-change/?sc=rsin Mon, 11 Nov 2024 11:10:46 EST Continuing education of non-specialists is crucial for improving and enhancing epilepsy diagnosis and treatment. Many countries lack enough specialists to care for people with epilepsy. Even in high-income countries, a significant percentage of people with epilepsy receive care from a non-specialist. International League Against Epilepsy Transicion a la atencion de adultos en epilepsia: Cerrar la brecha /articles/transici-n-a-la-atenci-n-de-adultos-en-epilepsia-cerrar-la-brecha/?sc=rsin /articles/transici-n-a-la-atenci-n-de-adultos-en-epilepsia-cerrar-la-brecha/?sc=rsin Mon, 11 Nov 2024 10:00:13 EST Para los adolescentes que son atendidos por personal medico pediatrico por fuera de un centro integral de epilepsia, el cambio de la atencion de la epilepsia en un centro de adultos puede ser abrumador, tanto desde el punto de vista organizacional como personal. Despues de anos de ser observadores pasivos, se espera que los adolescentes asuman la responsabilidad de muchos aspectos de su propia atencion medica. International League Against Epilepsy