Latest news from Myositis Association on News en-us Copyright 2024 News 115 31 / /images/newswise-logo-rss.gif /articles/the-myositis-association-wants-to-call-your-attention-to-a-rare-disease-that-has-gotten-almost-no-coverage-myositis/?sc=rsin /articles/the-myositis-association-wants-to-call-your-attention-to-a-rare-disease-that-has-gotten-almost-no-coverage-myositis/?sc=rsin Wed, 01 May 2019 12:05:55 EST Myositis Association /articles/myositis-a-rare-muscular-inflammatory-disease-that-often-goes-undiagnosed-or-misdiagnosed-disproportionately-affects-women-of-color/?sc=rsin /articles/myositis-a-rare-muscular-inflammatory-disease-that-often-goes-undiagnosed-or-misdiagnosed-disproportionately-affects-women-of-color/?sc=rsin Wed, 01 May 2019 11:05:07 EST Awareness campaign kicking off Myositis Awareness Month aims to ensure the over 75,000 people with the disease are diagnosed and get treated Myositis Association /articles/occupational-therapy-for-myositis/?sc=rsin /articles/occupational-therapy-for-myositis/?sc=rsin Fri, 26 Apr 2019 14:40:37 EST The Myositis Association celebrated National Occupational Therapy Month in April with a conversation with Dr. Malin Regardt, an occupational therapist on TMA's Medical Advisory Board. Myositis Association /articles/experts-and-patients-from-the-myositis-association-can-speak-to-the-media-on-peter-frampton-who-has-been-diagnosed-with-rare-muscle-disease-inclusion-body-myositis/?sc=rsin /articles/experts-and-patients-from-the-myositis-association-can-speak-to-the-media-on-peter-frampton-who-has-been-diagnosed-with-rare-muscle-disease-inclusion-body-myositis/?sc=rsin Mon, 25 Feb 2019 09:00:21 EST Myositis Association /articles/peter-frampton-diagnosed-with-rare-muscle-disease-inclusion-body-myositis/?sc=rsin /articles/peter-frampton-diagnosed-with-rare-muscle-disease-inclusion-body-myositis/?sc=rsin Sat, 23 Feb 2019 06:05:15 EST Legendary guitarist Peter Frampton announced Saturday that he has a rare, debilitating muscle disease called inclusion body myositis. Myositis Association /articles/myositis-experts-available-to-talk-about-myositis-during-rare-disease-month/?sc=rsin /articles/myositis-experts-available-to-talk-about-myositis-during-rare-disease-month/?sc=rsin Mon, 04 Feb 2019 11:05:54 EST Myositis Association /articles/the-myositis-association-celebrates-rare/?sc=rsin /articles/the-myositis-association-celebrates-rare/?sc=rsin Mon, 04 Feb 2019 11:05:12 EST Together with other rare disease organizations, The Myositis Association is encouraging those who live with myositis diseases to Celebrate Your Rare by speaking out about the challenges they face and the need for more research into the causes, treatments, and possible cures for these diseases. Myositis Association /articles/the-myositis-association-appoints-new-members-to-the-board-of-directors/?sc=rsin /articles/the-myositis-association-appoints-new-members-to-the-board-of-directors/?sc=rsin Tue, 27 Nov 2018 12:05:22 EST The Myositis Association (TMA), the leading international patient organization dedicated to improving the lives of people affected by myositis, is pleased to announce the appointment of five new members to its Board of Directors. Myositis Association /articles/the-myositis-association-appoints-new-members-to-its-medical-advisory-board/?sc=rsin /articles/the-myositis-association-appoints-new-members-to-its-medical-advisory-board/?sc=rsin Tue, 27 Nov 2018 12:05:02 EST The Myositis Association (TMA), the leading international patient organization dedicated to improving the lives of people affected by myositis, is pleased to announce the appointment of three new members to its distinguished Medical Advisory Board. Myositis Association /articles/dr.-william-shearer,-physician-to-"the-bubble-boy"-and-polymyositis-patient,-dies-at-81.-themyositisassc-has-experts-available-to-discuss-myositis-diseases-and-impact.-www.myositis.org-/?sc=rsin /articles/dr.-william-shearer,-physician-to-"the-bubble-boy"-and-polymyositis-patient,-dies-at-81.-themyositisassc-has-experts-available-to-discuss-myositis-diseases-and-impact.-www.myositis.org-/?sc=rsin Fri, 26 Oct 2018 12:00:00 EST Myositis Association /articles/the-myositis-association-announces-2018-research-awards/?sc=rsin /articles/the-myositis-association-announces-2018-research-awards/?sc=rsin Wed, 10 Oct 2018 00:00:00 EST TMA is pleased to announce they have awarded three new myositis research grants. Myositis Association /articles/muscle-disease-patients-gather-to-learn-about-myositis2/?sc=rsin /articles/muscle-disease-patients-gather-to-learn-about-myositis2/?sc=rsin Tue, 28 Aug 2018 13:05:48 EST TMA hosts its Annual Patient Conference at the Louisville Marriott Downtown on September 6-9. With more than 500 myositis patients and family members in attendance, this conference promises to be the largest in TMA history. Myositis Association /articles/the-myositis-association-welcomes-new-executive-director/?sc=rsin /articles/the-myositis-association-welcomes-new-executive-director/?sc=rsin Tue, 07 Aug 2018 14:05:09 EST The Myositis Association is pleased to announce the appointment of Mary McGowan as Executive Director. Myositis Association /articles/the-myositis-association-updates-and-upgrades-its-web-presence/?sc=rsin /articles/the-myositis-association-updates-and-upgrades-its-web-presence/?sc=rsin Thu, 07 Jun 2018 00:00:00 EST The Myositis Association announces the launch of its newly redesigned website, making it easier for visitors to access evidence-based information about all forms of the rare autoimmune muscle disease known as "myositis." Myositis Association /articles/may-is-myositisawareness-month.-the-myositis-association-has-medical-experts-available-to-speak-about-this-rare-autoimmune-disease-of-the-muscles.-tmamyositis.org/?sc=rsin /articles/may-is-myositisawareness-month.-the-myositis-association-has-medical-experts-available-to-speak-about-this-rare-autoimmune-disease-of-the-muscles.-tmamyositis.org/?sc=rsin Fri, 04 May 2018 09:00:49 EST Myositis Association /articles/may-is-myositis-awareness-month3/?sc=rsin /articles/may-is-myositis-awareness-month3/?sc=rsin Tue, 01 May 2018 08:05:33 EST Myositis Awareness Month brings attention to a rare autoimmune disease of the muscle that can cause disability for children and adults. Myositis Association /articles/myositis-experts-available-to-talk-about-rare-disease-day/?sc=rsin /articles/myositis-experts-available-to-talk-about-rare-disease-day/?sc=rsin Fri, 23 Feb 2018 08:05:51 EST Myositis Association /articles/new-classification-criteria-for-inflammatory-myopathies-a-breakthrough/?sc=rsin /articles/new-classification-criteria-for-inflammatory-myopathies-a-breakthrough/?sc=rsin Wed, 20 Dec 2017 00:00:00 EST The ability to diagnose myositis diseases and treat them properly just improved immensely with the publication of new, evidence-based classification criteria. Myositis Association /articles/muscle-disease-patients-gather-to-learn-about-myositis/?sc=rsin /articles/muscle-disease-patients-gather-to-learn-about-myositis/?sc=rsin Mon, 28 Aug 2017 09:05:34 EST The Myositis Association (TMA) hosts their 2017 Annual Patient Conference September 7-10 at the Sheraton San Diego Hotel and Marina. With more than 80 presentations and nearly 500 myositis patients, friends, and family members in attendance, this conference promises to be the largest in TMA history. Myositis Association /articles/personal-tragedy-gives-rare-disease-patient-new-resolve/?sc=rsin /articles/personal-tragedy-gives-rare-disease-patient-new-resolve/?sc=rsin Mon, 21 Aug 2017 09:55:48 EST Dan Seftick thought his biggest challenge in life was his rare disease, dermatomyositis. When his son Greg tragically died in an avalanche while hiking in Grand Tetons National Park, he discovered there can be much bigger mountains to climb. Myositis Association